Treating IBD: Moving Beyond Medicine {Part I}
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Have you ever wondered, why me?
Why was I diagnosed with Crohn’s? Why am I saddled with colitis?
Of course you have. We all say, “why me” from time to time. It’s completely natural. Most of the time, we mean it in a WHY ME kind of way. Putting it out to the universe because there’s no real answer to this question.
But what if you really asked why? What if you actually knew the why behind your IBD? Imagine what knowing why you get this illness would do for how you treat you it—at the root cause level.
Today, we are going deep my friend. We are taking it to the root, to the why behind your IBD so you can use this information to create a personalized healing plan tailored for just you.
Are you ready for a big, bold, episode? Fasten your seat belt and get ready for some big revelations.
Three Things You’ll Learn in This Episode
🌿 For all the gifts your doctor has, why they may not be the best teacher of root cause medicine
🌿 What IBD and a 3-legged stool have in common (turns out, alot)
🌿 Why knowing what’s at the root of your Crohn’s or colitis is the key to unlocking your personalized IBD freedom plan
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Mentioned in This Episode:
Episode 31: You’ve Got IBD, Will Your Kids Get it Too?
Connect With Karyn:
Schedule Your FREE 30-Minute IBD Consult
Episode Transcript:
Treating IBD: Moving Beyond Medicine {Part I}
Have you ever wondered, why me? Why was I diagnosed with Crohn’s? Why am I saddled with colitis? Of course you have. We all say, “why me” from time to time. It’s completely natural. Most of the time, we mean it in a WHY ME kind of way. Putting it out to the universe because there’s no real answer to this question. But what if you really asked why? What if you actually knew the why behind your IBD? Imagine what knowing why you get this illness would do for how you treat you it—at the root cause level.
Today, we are going deep my friend. We are taking it to the root, to the why behind your IBD so you can use this information to create a personalized healing plan tailored for just you.
Are you ready for a big, bold, episode? Fasten your seat belt and get ready for some big revelations.
[MUSIC]Hey there, Karyn here with you on The Cheeky Podcast and it’s time we have a good, juicy chat. Get your cup of tea, coffee if you must (I’ve got some lemon lavender mint and a candle by my side). Let’s take a deep collective breath, and let it out, get centered, grounded, and feel open to learn everything you can about why IBD came knocking on your door.
Our conversation today has to start with a disclaimer to your doctor. Thank God for gastroenterologists. After all their academic smarts (cause let’s face it, you have to be smart to get into medical school) and then getting through medical school, and then specializing in gastroenterology, hopefully getting board certified even, they have the medical and scientific knowledge to help us treat our Crohn’s and colitis with state of the art medications when everything else has failed and we just can’t get out that nasty a flare up.
Thank God for colorectal surgeons who are just as smart as gastroenterologists, and again went through all the medical school rigor, board certifications, and have to remain steady and clear headed as they perform intricate and complicated bowel surgeries so we can function in life again.
We need medical professionals like this in our life when we have IBD. I always tell my clients, make sure you keep ties with a qualified gastro (a surgeon if you have stricturing disease or massive colon involvement) because you never know when you’re going to need them.
THE PROBLEM WITH THE MEDS ONLY APPROACH
But the problem with always focusing on what the gastro gives you as treatment options and on that type of treatment regime, the medication only approach is that:
#1 It discounts so many other ways available to us to heal our digestive tract—ways that don’t include risks like a suppressed immune system or lymphoma.
#2 It doesn’t take into account that Crohn’s and colitis are highly impacted by the food we put into our body.
#3 Our IBD, it doesn’t ever really heal. Instead, it covers it up. It’s like when you know have friends over and you shove all the crap laying around your house into a nearby closet and hope know one looks in there. Your Crohn’s and colitis, it’s still there. It’s just not initially seen at a first glance.
And again, I am so grateful for medication for IBD, but in this time, in this day and age, with so much additional information at our fingertips, if you are not pairing your medication with more natural, more root cause approaches, if you’re not looking for ways to spend significant amounts of time away from your medication only approach, you are really missing the boat on what it is to truly find freedom from this devastating illness. Freedom that can give you your life back. And you, dear one, deserve to get your life back. You deserve it. And your family deserves to have all of you well.
Freedom from IBD is a beautiful thing!
So, when we are talking about Crohn’s and colitis, and other ways to find impactful healing, you’ve most likely heard about approaches other than medicine. If you’re a Cheeky Podcast regular, you definitely have heard about other ways to heal that use food, or supplements, or lifestyle tools like finding ways to managing the stress in your life.
WHY DO NATURAL APPROACHES WORK?
But why do approaches like these work and why should you try them? Today, I want to take you back just a little bit, and go a bit deeper with you to help you truly understand the “how” and the “why” behind natural, root cause medicine because it’s one thing to practice it—to go on that gut healing diet (gluten free, dairy free, SCD, autoimmune paleo…), it’s one thing to take the supplements you see touted on the internet as something that helps IBD (maybe vitamin D, turmeric, or gut repair powders…), but it’s a whole other thing to really, at a deep level, get the how and the why behind natural approaches like this.
Knowing why these approaches work can help you tailor them to best suite your needs and help the approaches you pick work best for you. It’s so important that you don’t just go out and try that diet or supplement everyone is talking about because when you don’t understand your own make up and what you try doesn’t work, you think—“Oh, everyone is wrong. Natural remedies don’t work.” Or you think, “What’s wrong with me? Why do things like this work for everyone else but not me?”
BECOMING IBD UNSTOPPPABLE.
You see, IBD mamas who really get the why’s and the how’s behind a more natural way of healing, now those are the mamas who know so much about their body, what works for it and what doesn’t, that they become unstoppable.
To get this conversation started, we need to remember that Crohn’s and colitis are autoimmune diseases—diseases where for some reason, the immune system begins to attack itself. Lots of people in the world suffer with some sort of autoimmunity. Almost 4% of the world’s population has one of 80 known autoimmune conditions. And according to the American Autoimmune Related Diseases Association, as many as 50 million Americans are living with an autoimmune disease. 50 million! And the cost of treating it in America alone is $86 billion dollars a year. A year!
Many don’t even know they have autoimmunity. They know that they don’t feel well, but they don’t know why. They rush from doctor to doctor, never getting a proper diagnosis. Often times being told that if they just calmed down, if they just got over their anxiety or their stress, and often if feels like we are getting a verbal a pat on the head by the doctor about being “good girl” and maybe the problem will go away. You may have been in that place yourself, maybe even for a long time before getting the diagnosis of Inflammatory Bowel Disease.
Well, at least after all the crazy, wanting to pull your hair out moments, at least we know what autoimmune disease we have. We know we have Crohn’s or colitis or maybe both. And I should say, at least we know one of our autoimmune conditions because if you know anything about how autoimmunity works, you know that autoimmunity likes to travel in multiples. It’s not uncommon for IBDer’s to also have other autoimmune conditions like thyroid disease, lupus, fibromyalgia, psoriasis, rheumatoid arthritis, and so on.
To really become a bad ass IBD mama, to really take control of your own healing destiny, it’s time that you got a behind the scenes look at your autoimmunity and what’s causing your IBD. That’s actually the place where root cause healing begins to take shape. When we want to move beyond medicine to help treat our symptoms at the root level, we start there, in the why and the how, with what’s created all this gut chaos in the first place.
The really cool thing about autoimmunity is that in the last 10-15 years is that the research has exploded. So much more is known about why we get Crohn’s and colitis than ever before. I remember 35 years ago when I was first diagnosed, no one knew anything. Literally I remember my doctor telling me, this is what you have, and we have no idea why it happens. But in your lifetime he said, I bet we figure it out and I bet we find a cure. Now, finally, the research is coming in droves.
Unfortunately, the phenomenal research that’s coming out hasn’t changed the way doctors treat IBD yet. Did you know that when new research comes out, the kind that can be replicated and really put to unbiased rigor to test it out, it often takes about 20 years from that point to put those new ideas into practice by doctors. Talk about a trickle-down effect. It’s like a clogged faucet, coming out in 1 drip every 7 days. Can you imagine if your shower worked that way? Frustrating, I know. But trust me when I tell you, it is coming. Medical practices and doctors are beginning to catch up with the science. We are getting there.
So what is the research telling us about IBD and about the why’s and the how’s of autoimmunity? What do we know about why this autoimmune disorder is plaguing us? It all has to do with a 3-legged stool. Yep, a 3-legged stool.
THE 3 LEGGED-STOOL RESEAON YOU HAVE IBD
Picture a bar stool. It’s round on the top with 3 legs underneath to hold you up as you sit your behind on it. Perfectly balanced, those 3 legs have got you supported. But what would happen if one of those legs broke? Can a 3-legged stool hold you up with 2 supports? With 1 support? Absolutely not. With even just one leg of the stool missing, the stool collapses.
And this is how autoimmunity works. Autoimmunity is like a 3-legged stool. Each leg of the stool represents a factor that greatly contributed to your IBD diagnosis. If we can begin to strengthen even one leg of the stool, we can have profound positive impacts on weakening the strength of this IBD monster. Rebuild two of the legs, even bigger power, and all three, now you’ve made strides that will have a profoundly positive impact on the rest of your life.
Now, you might be thinking, wow Karyn has really put together an amazing analogy here. The 3-legged stool. How insightful of her. But nope, I’m just the messenger. Researchers, scientists, and some doctors have been talking about the 3-legged stool approach to autoimmunity since the early 2000’s. I’m just relaying this information as I understand it best. So many have batted around this idea, but I think it first came from Dr. Alessio Fasano, a researcher, a clinician, and an MD working in the field of digestive disease and autoimmune disorders.
And I want you to really get the why’s and the how’s of the rungs of the autoimmune 3-legged stool so you can start to put the puzzle pieces of your own illness together. What are your main culprits, your main factors? They are different for all of us, but knowing yours will help you begin to formulate the best root cause (get IBD at its roots and rip them out) treatment plan for you.
SO WHAT’S IN EACH LEG OF THE STOOL?
So what are the legs of this autoimmunity stool? The three legs are:
- Genetics
- The Microbiome/Intestinal Permeability
- The Stressor
One more time, it’s genetics: your DNA, your gene expression that you were given at birth. It’s the health and the strength of your microbiome: the trillions of bugs that inhabit our digestive tract and determine if you are healthy or in gut dysbiosis. And #3, it’s the stressor, the trigger that causes everything to collapse.
OK, so now you know what each leg of the autoimmunity stool represents. Let’s dive in just a bit deeper here so you can begin to put your own why’s and how’s, and ultimately your own root cause treatment plan together.
We’ll start with genetics. Your DNA. This is what is given to you at birth, and you can’t change it right? It’s just who you are destined to be. If Crohn’s or colitis is in your make up, you’re screwed. Well, if you’ve heard anything at all about an emerging field of research called epigenetics, you know that what we learned as kids is about our genes being unflinching is dead wrong. In fact, our genes aren’t as stable as we once thought. They may actually be more malleable, and this is great news for those of us with IBD—those of us who’s genes predestined us to this disease.
Epigenetics says that just because your parent(s) gives you a gene for autoimmunity or cancer or Alzheimer’s (fill in your disease of choice) doesn’t mean we will get it. How mind blowing is that? We have the power to change our genes for the better—or the worse, depending on the choices we make in life, and depending on our life factors—ones we have control over and ones we don’t.
The Human Genome Project has been looking into our DNA and has concluded that we have the power to turn on gene expression and turn off gene expression. This is the work of the field of epigenetics. Fascinating right? Is it just my nerd brain exploding here? It’s pretty cool, right?
COOL, BUT NOW WHAT?
So, what does this information mean for you?
It means that just as your genes played a role in contracting IBD in the first place, they can also play a role in your root cause healing. It means that you may not be doomed to a life of nothing but sickness for the rest of your life.
That’s very encouraging, isn’t it?
At the cellular level, we can make positive change happen. When we remove the source of the damage, we give the tissue time to heal, we restore energy to your cells so that immune function can get back on track and as a result inflammation can heal, we are literally changing our genetic make-up.
We’ll get into more specific ideas on what some options might be for you to consider and how this can be accomplished in Part II of our Treating IBD: Moving Beyond Medicine series, but for today, just revel in the fact that epigenetics is a thing and the genetics part of your autoimmunity stool has the power to become strong again.
One last note I have about this whole topic—genes and epigenetics—I don’t know about you, but for me, when I talk about having IBD and I know there’s a gene link, it always makes me think about my kids. Does it do that for you?
While raising my kids, knowing IBD has been such a huge factor in my life, knowing that my kids don’t have to be destined to a life of IBD, I always think about what I can do to make sure this insidious illness doesn’t take over their body. If this topic makes your mind go there as well, go check out Episode 31 of the podcast: You’ve Got IBD. Will Your Kids Get it Too? It’s got some great ideas for you to give your kids the best start and maybe even have an impact on their genes too. I’ll leave a link in the show notes.
OK, we talked about the first leg in our 3-legged stool of autoimmunity. Are the wheels turning for you about how your genetic makeup may have played a role in developing this illness, but also how you have the power to say, “No. This is where I am, but this does not mean this is where I’ll always be.”
Powerful stuff.
LEG #2: THE MICROBIOME
Now let’s talk about the second leg of your stool, the microbiome and possibility intestinal permeability. So we know all about the microbiome. It’s a hot research commodity, I’ll tell you that. Lots of studies are being conducted about the health of the microbiome and how it plays in the diagnosis of Crohn’s and colitis. I’m so thankful for this because I think it’s the start of scientists finding a cure.
What we know about the microbiome is that it plays a vital role in all of the organs, systems, and pathways in our body. It plays an especially big role in how our digestive system operates. A healthy microbiome with a diverse range of bacteria leads to a healthy gut and that filters into other areas of our body too. But an unhealthy, unbalanced gut bug ratio, now that leads to an imbalance of bacteria and this state of imbalance leads to chinks in our immune function. And in the case of IBD, the immune system begins to attack itself.
We often think of our gut bugs as just a part of our gut, but the bacteria of your gut will have a huge impact on many functions of your body.
Once the immune system begins attacking itself, inflammatory pathways begin to light up because the immune system regulates inflammation. See how the microbiome, our immune system, and our inflammation are all intricately related? As our immune system begins to wage war against itself, our inflammatory pathways turn on and begin to wreak havoc on our digest system. The perfect IBD storm and it can all be traced by to the balance of your microbiome.
Now the same doctor who first started talking about this 3-legged stool analogy for autoimmune disease, Dr. Alessio Fasano, is the same man who also was the first to bring up the idea of intestinal permeability or leaky gut. And we just cannot talk about the microbiome, about IBD, and not mention leaky gut.
If you’re really familiar with this topic, bear with me for just a sec because it’s important we are all on the same page when we’re talking about leaky gut. And of course, a refresher is always good too. Leaky gut starts with the mucosal lining of the digestive tract. The barrier between what goes into our bloodstream and what stays in the digestive tract. The mucosal lining of the gut is what we call, semi-permeable. Some things pass through and some stay out. We want the nutrients in our food and water to pass through, but we don’t want large food particles or other foreign substances getting in.
When autoimmunity strikes, our bacterial system can be out of balance, so our intestine becomes inflamed, and it’s not unusual for the tight junctions of the mucosal lining to open wider so that food particles and toxins breech the barrier and enter the bloodstream. This is what is coined as intestinal permeability or leaky gut.
Now, just because you have IBD doesn’t mean you have leaky gut, but many do and it can lead to other autoimmune diseases, food sensitivities, hormone challenges, metabolic disorders… you name it. And all of it started with the second leg of your autoimmune stool—your microbiome.
Now again we’ll be getting into some ways you can help your microbiome to restore its balance in the Part II of this series, but I do want to share with you what new emerging research is looking into with gut dysbiosis and balancing the bacteria in your digestive system.
There’s been a great deal of research into probiotics helping in this area. There’s even a specific multi-strain probiotic that’s been shown to have a positive impact for those with IBD. And that’s VSL#3 or Visbiome. These high quality, high dose probiotics have shown in research studies to be very effective in aiding our microbiome to balance out.
But what’s even cooler, is the latest research targeting very specific probiotic strains to help those with IBD to bring their gut dysbiosis back into balance. For example, there’s research showing the positive effects of LA1- lactobacillus acidophilus. It’s been shown specifically to improve intestinal barrier function. So if you have leaky gut, this particular strain can prove beneficial. Another probiotic strain, Bifidobacterium lactis, has been researched and is now associated with lowering colonic inflammation and it’s also been beneficial in regulating T cells in the body. That’s huge because excessive activation of T cells has a large role in the expression of IBD within our body.
That’s just a couple of the specific probiotic strain studies going on. I, for one, hope this research really continues. Using targeted probiotic strains to help each of us individually with the IBD symptoms that plague us most. It would be a huge advancement in IBD root cause treatments.
So, genetics, now the microbiome… are you beginning to put together a picture of how this IBD came about for you? Why do you think your microbiome was malfunctioning? The reason for all of us can be different. For some, it’s diet. For others it can be stress, or hormones, or a virus or parasites… We are born with a microbiome so did the imbalance develop in utero? That could be a factor too. As research continues into this field, keep the health of your microbiome at the top of your mind. We’ll talk about ways you can strengthen it in Part II of this series.
LEG #3 THE STRESSOR
I’m sure you’ve heard the saying, the straw that broke the camel’s back. Gene expression and your microbiome are one thing, but without the straw that breaks the camel’s back, without the stressor, or as I like to call it, the trigger, we don’t have Crohn’s or colitis.
This could be the reason why you get Crohn’s and your sibling doesn’t. Possibly the genetic makeup is there for both of you, but you got the trigger—lucky you. And often times, in fact most of the time, it’s not just one trigger. But a cascade of triggers, like a rolling snowball, it gets bigger and bigger until it becomes out of control.
Your trigger may be chronic life stress over a period of time. It may be a bacterial or viral illness that favors the gut, like the flu or like food poisoning. It may be a hormonal shift, like starting birth control or giving birth, or less likely but even going through the hormonal shift of menopause—that’s more likely to exacerbate your IBD that create it, but hormone shifts do play a role. Exposure to toxins, and pesticides, other autoimmune conditions… all of these things can be your trigger. The final straw that breaks the camel’s back.
Most of my newly diagnosed IBD clients will tell me, “I felt this brewing for quite a while.” Or “I should have seen this coming.” They saw it coming through the events that were unfolding in their life, in hindsight of course.
When you use this information to start thinking about a more long term, root cause healing approach, think about the role these triggers played in your life to contribute to your diagnosis. And if you are struggling to figure out your trigger or triggers, get in touch. I’m happy to help process this with you. We’ll get to the heart of it together. You can email me at hello@karynhaley.com anytime. That’s what I’m here for.
Part of your IBD treatment plan (besides the medication, besides your diet, besides any supplements you take) should include ways to mitigate this trigger you are experiencing. It may be causing a physical stressor, or an emotional stressor, or a chemical stressor for your body through the toxins you are exposed to (maybe all three)—because if these are not dealt with, I’m telling you straight mama, you will never get the full healing you so desperately desire. The full healing you absolutely deserve.
TAKE A DEEP BREATH AND TAKE THIS ALL IN.
How is this landing with you? It’s a lot to take in. I told you we were going deep today. And there’s no pressure to have it all figured out right now. Today, is just about getting a sense of what’s been contributing to your illness. How did you get here? It’s not the stuff your doctor typically talks to you about, but you not only have a right to know, like I said at the top of the episode, you need to fully appreciate how you got here, the why behind it all to help you develop your personal root cause treatment plan.
Next week, in Part II, we get into some ideas for what your plan might look like. Keeping in mind your personal 3-legged stool, you can begin to get to the heart of root cause healing. That’s where you’ll start.
HOMEWORK
So, I know I never do this to you, but this week, you get to be one of my clients. I give them homework and now I’m giving you homework too. Before we chat again next week, do some deep thinking about each leg of your autoimmunity stool: your genetics and even more importantly your epigenetics, your microbiome: What is the state of your gut bugs? Do you have leaky gut? What are your main symptoms right now? And lastly, what were those stressors, those triggers back when you were diagnosed? Are they still a factor in your life? Are there new stressors that have creeped up that are holding your healing back?
Have this information at the ready next week because next week, we are going even deeper to make positive change for your IBD in Part II of Treating IBD: Moving Beyond Medicine. Can’t wait.
Until we meet again, I’m wishing you a cheeky and healthy gut healing journey. Chat soon!
These statements have not been evaluated by the Food and Drug Administration.
This podcast, video, and blog post is not intended to diagnose, treat, cure, or prevent any disease.